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Thursday, September 9, 2010

An Overnight Adventure!

I spent yesterday preparing for our overnight stay at Children's. Finnan's Neurologist suspects he may be having Absence Seizures. These are seizures where you don't convulse, you just check out for a few seconds. These have been suspected before, but when we had our last visit the Dr. noticed and set us up for an overnight stay. Because Finnan has the reverse reaction to sedation, we always have to put him under General Anesthesia for any procedure or test. We were told to be here at 7 a.m. so that he could receive the anesthesia, be hooked up to the 34 leads and put in a room to begin the 23 hour EEG.
  When he awoke from the anesthesia he was like a bear, so we stayed in recovery for a little while. He couldn't speak or control his movements. When he finally stopped moving, we were taken up to our "suite". He was still extremely agitated and repeatedly screamed "STOP! I WANT TO GO HOME!! I DON'T BELONG HERE! LET ME GO! I DON'T BELONG HERE!".
  It took a good hour and a half once we got in our room for him to calm down and stop screaming. Naturally he wouldn't drink what they had on hand as it wasn't in a bottle. So a nurse offered to go down to the cafeteria and get a bottle of "Yellow Gatorade". Once Finnan started drinking the Gatorade, he was worlds better.
  I packed an ice chest of food for him since I knew the hospital choices for his diet would be... lets just say bland.
  Finnan wanted Pizza. Knowing his feeding patterns, I had packed everything to make his GFCF Pizza. Its about 9:30 at night now, and all he's eaten today is Pizza. He had one for lunch and another for dinner. He's moved on to Blue Gatorade, but wants nothing but Pizza.
  So in this room, there are cameras and microphones to record Finnan's every moment. We have little buttons/buzzers to press if or when Finnan has a seizure and it will be recorded via EEG as well as by the camera. So far we haven't had to press our buzzers.
  Finnan's Grandparents bought him a Nintendo DS for this adventure and Thank God they did because we wouldn't have made it through this day without it. Its held his attention when we needed it to and is always present as backup.
  On that same note, I can't even tell you how lucky we are to have family close. They have helped us out so much with all of Finnan's appointments- either coming with for support or by caring for our other two children. It really is amazing to have them here. My sister is... I can't even find the words for her. She's just been a blessing to have so close. She always offers to help out and never makes me feel guilty or like I'm asking too much for her to watch my children. She and her husband come and take my kids to their house to hang out for the weekend or go visit her family, just on a whim. They are a such a gift.
  My Dad is coming in the morning to help with Finnan's tentative discharge. Finnan loves his "Bear" and will listen to anything he says or tells him to do. Again, we are so blessed to have them near.
  Well, Finnan has summoned me to help with his Harry Potter game and I am obliged to help. Hope to be posting again soon with positive news.

Thanks to all our friends who've sent texts tonight letting us know you're thinking of us. Love you all!

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